The Boy Whose Skin Fell Off

  |  Buy to Own: 19/04/2010
  |  49 min
Rated TBC by the BBFC


Documentary profiling the last months in the life of 36 year-old Jonny Kennedy, who suffers from a rare and debilitating genetic condition, Dystrophic Epidermolysis Bullosa (EB). Facing up to the realities of his situation, but determined to live his life to the fullest in the months remaining to him, this uplifting film, directed by Patrick Collerton, charts Jonny's attempts to move home, fly a plane, visit Downing Street, and befriend the celebrity Nell McAndrew.